On these pages we honour the intellectual contributions of our esteemed colleague and dear friend, Ken Mason, in the broad field of medical jurisprudence. We invite short academic posts up to 1,000 words that are inspired by Ken Mason’s writing in the field. Anyone who knew Ken or has been influenced by his work is welcome to submit a proposal to Graeme.Laurie@ed.ac.uk.

Ken Mason was an Honorary Fellow in the School of Law at the University of Edinburgh for 32 years, from 1985 until his death on 26 January 2017. Even before joining the School of Law officially, Ken was publishing significant contributions in medical law and ethics during his time as Regius Professor of Forensic Medicine, also in Edinburgh, from 1973-1985. During that early period he established honours and masters courses in medical jurisprudence with his colleague Alexander (Sandy) McCall Smith, and this work formed the basis of their textbook, Law and Medical Ethics, that was first published in 1983. It was the first such textbook of its kind in the United Kingdom and helped to establish Ken Mason has an unassailable founding father of the discipline in the UK. The book has been used by multiple generations of undergraduate and postgraduate students since its first appearance, and many of Ken’s former students offer contributions on these pages that speak of the ways in which Ken and his intellectual ideas have inspired them.

Ken Mason was a prodigious scholar. He was fascinated by all aspects of medical law and ethics, which in Edinburgh we call Medical Jurisprudence. This both reflects the historical links between medicine and law that have existed in our institution since the 18th century, and also captures the idea that our field transcends disciplines and requires input across different specialities to make genuinely influential contributions. While Ken’s command of the law was often superior to that of many of his legal colleagues, his interests were particularly engaged by reproduction & the law, as well as by end-of-life issues. True to form, however, Ken was always open to changing his mind. It was not unusual from one academic year to the next for colleagues to be wrong-footed by a 180-degree volte face by Mason on any given topic! On more than one occasion, he declared himself a feminist - as much to his own surprise as to anyone else’s.

Still, Ken often professed to having a ‘bee in his bonnet’ about stubborn issues and questions in medical jurisprudence. In particular, we recall the following:

- he strongly supported the view that a mature minor should not be allowed to refuse treatment, even is she has capacity to consent (Gillick)

- he took issue that that law affords the fetus ‘no rights’;

- he was vexed by the ‘individualistic’ turn in medical law, and was drawn to notions such as relational autonomy;

- he often called himself a communitarian, and he was intrigued by areas of law and ethics that reflected this idea;

- he was engaged by assisted dying legislation, especially on what would count as adequate safeguards and whether medical practitioners should be involved;

- he insisted that death was a process, and not a moment, and he was frustrated by law’s failure to reflect this: this has implications for his view on transplantation;

- he vehemently disagreed with the rule that you cannot recover for the birth of a healthy child even when there is negligence;

- he would have been fascinated by the current revisitation of the 14-day rule in embryo preservation and use.

You will find contributions here that reflect these and many other of Ken Mason’s ideas. As stated above, we welcome contributions from anyone who knew him or his work. As a reminder, here are some links to Ken’s contributions to medical jurisprudence over the years as well as to other examples of the work of people who have honoured him:

-Ken Mason's publication list on Edinburgh Research Explorer

-Ken Mason’s monograph, The Troubled Pregnancy (CUP, 2007)

-Ken Mason’s festschrift, First Do No Harm (SAM McLean (ed), Ashgate, 2006)

We will continue to populate this site with contributions as and when the come in. We will alert audiences via the Mason Institute and its Twitter account @masoninstitute.

If you would like to contribute, please contact Graeme.Laurie@ed.ac.uk

If you would like to become a member of the Mason Institute, please contact Annie.McGeechan@ed.ac.uk

If you would like to leave a message of condolence, please visit the official site here: www.inmemoryofkenmason.law.ed.ac.uk

Please scroll down this page to read our latest blog posts.

Tuesday 14 March 2017

Continuing the Intellectual Legacy of JK Mason: From Autonomy to Vulnerability and Beyond


By Graeme Laurie, School of Law, University of Edinburgh

I first met Ken Mason in 1995 when I joined Edinburgh Law School as a junior lecturer in private law. I had previously read medical law and ethics at Glasgow University, the only institution at the time where it was possible to spend two years of Honours study specialising in the field. Ken Mason had been my external examiner. I had studied using his textbook, Law and Medical Ethics, published with Sandy McCall Smith, and then in its third edition. But I had never met Ken Mason, already a legend in medico-legal lore with a formidable intellectual reputation. I was nothing short of intimidated - for which read terrified - when I joined the Edinburgh staff. There was absolutely no cause for concern. In our first meeting to discuss teaching, Ken immediately put me at ease and invited me into the academic family: “What do you think we should do, dear boy?”, was one of his first questions to me. Such openness and generosity of spirit were so typical of Ken, and they came to define the relationship that we enjoyed for the next 22 years.

Ken and I had a lot of fights. We fought in his office and we fought in class in front of the students. They were the best of fights. It was intellectual sparring in the most respectful, and most uncompromising, of ways. The students loved it, and we loved it. Our work was better for it. He never let me away with any academic slight-of-hand, nor I he. He expected nothing less of me. Ken was never happier than when we were discussing the latest medico-legal case, or the intricacies of the Human Fertilisation and Embryology Act 1990, as amended -- “But what does it mean?!”, he would insist with an accusing stare as if you were personally responsible for the latest legislative dog’s breakfast!

Ken and I wrote a lot together . I was privileged to be included on to the authorship of Law and Medical Ethics in its fifth edition, first as a contributor of a few new chapters, and later as full co-author with Ken when Sandy McCall Smith moved on from academia. It was hard to lead a new authorial team with Shawn Harmon and Gerard Porter for the tenth edition in 2016 because this was the first time without Ken. Yet, Ken’s influence was still felt, and we were delighted that he contributed the Foreword, written with typical humility: “Best of luck to one and all! The surface to understanding may be changing, but we must hope that Law and Medical Ethics continues to ensure that its signposts are correct and are pursued.” This is the final challenge of Ken Mason to all scholars in his field.

In the rest of this contribution, I will suggest ways in which Ken and I would have pursued our collective contribution. In addition to Law and Medical Ethics, we wrote many articles and chapters together, the last of which was our joint contribution to the festschrift for Sheila McLean: Inspiring a Medico-LegalRevolution (Ashgate, 2015) . In a chapter entitled, Trust or Contract: How Far Does theContemporary Doctor-Patient Relationship Protect and Promote Autonomy? , we tackle the emerging concept of vulnerability as an aspect of autonomy protection and promotion in health and social care law. It stems from the Court of Appeal ruling in DL v A Local Authority [2012] EWCA Civ 253. This case intrigued us for many reasons:

1.      To us, it represented the latest step in the fetishisation of autonomy in medical law, but in new and as yet unexplored ways;
2.      It reaffirmed the enduring role of the inherent jurisdiction of the English High Court to protect vulnerable persons, raising potentially wide-ranging implications across the entire discipline of medical jurisprudence;
3.      It broke down barriers between medical law and other legal fields, including social care, immigration, and domestic & international human rights, as well as raising important implications for an ethic of care that can so often be absent from formal law itself;
4.      It suggested the emergence of a new path through medico-legal conceptualisations of autonomy and best interests to date, notably that the binary labels of capacity/incapacity were being recognised as of limited utility – something we had long argued - and that a Third Way might be necessary to support people in-between and that would help lead them through uncertainty and back to autonomy (where this has been questioned); and finally,
5.      It raised more questions than it answered, which was always a great source of some new fights!

In Re DL, a local authority raised questions about the treatment of an elderly couple being cared from by their 50-year-old son, including alleged threats and physical abuse, preventing the parents from leaving their home, and obstructing carers and health professionals. Legally, the parents had capacity as defined under the Mental Capacity 2005 Act. This meant that the Court of Protection had no jurisdiction. Nonetheless, the local authority sought an interim injunction from the High Court via its inherent jurisdiction despite the fact that it was thought to have been abolished by the 2005 Act.

The central legal issue for the CA was summed up by McFarlane LJ:

“The question for consideration is whether, despite the extensive territory now occupied by the MCA 2005, a jurisdictional hinterland exists outside its borders to deal with cases of ‘vulnerable adults’ who fall outside that Act and which are determined under the inherent jurisdiction.” 

In confirming the enduring nature of the jurisdiction, the Court of Appeal highlighted a number of important issues:

i. The inherent jurisdiction of the High Court extends to adults whose autonomy has been compromised by external factors, such as undue influence, and when this leaves them outside the protection of the MCA.

ii. The category of persons potentially caught by the jurisdiction is determinedly open-ended. As Munby J. said in Re: SA (Vulnerable adult with capacity:marriage) [2005] EWHC 2942 (Fam):

“… I would treat as a vulnerable adult someone who, whether or not mentally incapacitated, and whether or not suffering from any mental illness, is or may be unable to take care of him or herself against significant harm or exploitation or who is deaf, blind, or dumb, or who is substantially handicapped by illness, injury or congenital deformation. This…is not and is not intended to be a definition. It is descriptive not definitive.” This was entirely endorsed by the Court of Appeal.
 
iii. The jurisdiction is aimed at ‘…enhancing or liberating the autonomy of a vulnerable adult whose autonomy has been compromised by a reason other than mental incapacity…’.  Its application therefore covers a potentially wide range of circumstances, including medical, welfare, social care and marital cases. However, decisions are not to be taken on behalf of persons and in their best interests. It therefore raises crucial questions about the nature and scope of the court’s powers to intervene.

iv. The nature and scope of court powers are at the same time specific (as complementary to the MCA and the CoP) and wide-ranging (as stated above). Indeed, the Court of Appeal noted that the exercise of the jurisdiction should reflect a ‘facilitative, rather than dictatorial, approach’ towards ‘the re-establishment of the individual's autonomy of decision making in a manner which enhances, rather than breaches, their ECHR Article 8 rights.’ 

For us, this raised a series of issues that we would have explored much more fully and deeply if time had been on our side. I intend to do so, alone and with other colleagues committed to continuing the legacy of Ken Mason. For now, I offer the following tantalising intellectual tidbits that hopefully will inspire new fights and new contributions to the discipline of medical jurisprudence that Ken Mason loved and to which he contributed so much:

·         Who is vulnerable within this framework, and on what basis is it ethical and morally defensible?
·         What does it mean to enhance or liberate autonomy in ways that are not unacceptably paternalistic?
·         What are the limits of the jurisdiction, both legally and ethically?
·         What are the implications of the jurisdiction for medical jurisprudence generally?
·         What is the future of the jurisdiction?

As we approach the fifth anniversary of the Court of Appeal ruling in Re DL (March 2017), it has been mentioned or considered no fewer than 19 times in subsequent cases. And, while there has been important professionally oriented discussion, the academic reaction has largely been muted (with a few notable exceptions here  and here).

For Ken Mason, this would be a clarion call to action. His quest for new knowledge and deeper understanding was insatiable. His curiosity and enthusiasm were infectious. It was an honour to know him and to work with him. It will be a privilege to attempt to continue his intellectual legacy.   

Reflections on a motley coat

By Nayha Sethi, School of Law, University of Edinburgh

I still remember very clearly the first time that I met Ken. It was the introductory seminar of my LLM module in Medical Jurisprudence. Whilst having such a wide array of fascinating topics to discuss each week already felt like a treat, the real show-stopper for my fellow classmates and I was having an 89 year old Professor teach us. And not just any 89 year old Professor, but THE Ken Mason, ‘Ken the legend’ as he soon came to be known amongst us. I so looked forward to Wednesday morning seminars, to hearing what Ken had to say about all of the challenging topics that we covered (particularly on reproduction and assisted dying), to watching him debate with his colleagues (sometimes with a mischievous argumentative glint in his eye), to chatting with him over the coffee break, to which he insisted bringing for the class a variety of chocolate biscuits, tea and coffee and his beloved kettle, still going strong since the 1970s we guessed.

A few years on, we set up the Mason Institute in Ken’s honour. We named the Mason Institute blog ‘the Motley Coat’ after Ken’s inaugural lecture entitled ‘Ambitions for a Motely Coat’. I am sitting with a copy of the transcript of that lecture, delivered on 28th February 1974, open beside me as I write. Ken borrowed the title, taken from Shakespeare’s As You Like It, in which he starred as Jacques in a school production many years earlier. Ken reminded those attending his lecture that in the play, Jacques met a jester who impressed him, upon returning to his friends, Jacques proclaimed:

‘and in his brain,
which is as dry as the remainder biscuit after a voyage,
he has strange places crammed with observation,
the which he vents in mangled form

‘Oh!’, said Jacques, ‘oh! That I were a fool; I am ambitious for a motley coat.’

Ken concluded his lecture with the following words:

‘I have tried to show you some ways in which I would hope to justify my appointment by transforming the rather monochrome, unvarying cloth of traditional forensic medicine into what I believe to be a fresh, multicoloured and multi-directional motely coat of community service, resting on a broad base of service to the community in general and the police in particular, fed intellectually by contact with the students of many disciplines and extending arms which genuinely welcome and are anxious to provide a full service of co-operation’.

Given the numerous and vast contributions which Ken made throughout his academic career, it is safe to say that he was certainly successful in his endeavour of transforming forensic medicine into a fresh, multicoloured and multidirectional coat.

Ken was also very much successful in extending his arms out to students and colleagues alike. He was particularly generous with his students, whom he inspired, adored and indulged with endless patience and enthusiasm. I’d often leave his office with another book which he thought I might find interesting, or a new angle to explore in my work, and always with the feeling that my own thoughts and perspectives mattered too. He was constantly encouraging and very much open to genuine debate. He taught me that even after 97 years, it is perfectly acceptable to say ‘I don’t actually know the answer to that’ or ‘perhaps I have changed my mind’, and the importance of listening to others, always with respect.

I remember the first time that I visited Ken in his office, no longer as a student but as a colleague, the year following completion of my LLM. I knocked on his office door one lunchtime, and was greeted by Ken, sitting in his chair, with the cricket blaring on the radio in the background. He was
nibbling away at some of his favourite Jamaican ginger cake. Every so often he would like to have a little rant (ranging from deeply philosophical musings, right up to trivialities on the diminishing quality of Jamaican ginger cake). Often such rants were premised with ‘the only bee in my bonnet is...’.

It transpired that Ken had quite a few bees in his bonnet, all of which were a delight to hear about. His reflections and observations were so insightful and more often than not, injected with a good dose of Ken’s signature humour. Alongside his ability to laugh and to make others laugh, in all of our conversations, no matter what the topic, no matter how Ken was feeling, he approached his colleagues and students with openness, humility and kindness. What also struck me about these rants was that Ken would often end them with a question, he honestly wanted to know what others thought, he was just as interested in listening to and learning from others as he was in sharing his own opinions.

I was always so impressed with Ken’s eagerness and tireless efforts to keep abreast of the latest developments in medical jurisprudence, particularly when office visits turned into home visits. He was keen to discuss the latest case law or journal articles over a few glasses of Bombay Sapphire (indeed that’s when the discussions became even more interesting!)

Ken had so many bees in his bonnet because he genuinely cared, he genuinely wanted to make an impact, to continue in his service to the community. This was evidenced after his ‘official’ retirement, which really only meant that he ceased teaching and continued to write from home. Ken never ceased in transforming the motley coat. I look forward to working with colleagues within and beyond the Mason Institute, in continuing Ken’s legacy, inspired by his dedication to transformation, multidisciplinarity, dialogue, engagement with students, open arms and community service. Now what bee is in your bonnet?....

Is there any reason in principle why we should not own our personal data? Revisiting ‘Consent or Property? Dealing with the Body and its Parts in the Shadow of Bristol and Alder Hey’ by JK Mason and Graeme Laurie

By Leslie Stevens, School of Law, University of Edinburgh

In 2001, in the aftermath of the Bristol and Alder Hey organs scandal, Professor JK Mason and Professor Graeme Laurie posed thought provoking arguments around the possibility of a mixed-model of regulation around uses of human tissue and organs. In ‘Consent or Property? Dealing with the Body and its Parts in the Shadow of Bristol and Alder Hey’[1] Mason and Laurie critically evaluated the shortcomings of the consent model when applied to the use and storage of organs and human tissue and considered the extent to which a properly conceived property model could work as a necessary and valuable adjunct to the obtaining of informed consent. Since the time of their article, the Human Tissue Act 2004 was passed placing primacy in the obtaining of ‘appropriate’ consent prior to any use or storage of a deceased person’s body (or material obtained from their body) other than for anatomical examination,[2] representing ‘… a lost opportunity to look at the law and the body as a whole.’[3] In their article, Mason and Laurie persuasively argue cogent reasons why a property model applied to the human body can facilitate further and better respect for individuals’ autonomy.

More than a decade and a half later, in my work with Professor Laurie on the Administrative Data Research Centre Scotland project[4], similar questions have arisen as to the efficacy of the consent model, but in particular, the consent-or-anonymise paradigm at work in context with the use of personal data for research purposes.[5] Other work has considered the prospect of a property model in an effort to provide individuals with more control over their personal data, attracting robust arguments both for and against this idea.[6] Even if the law in the UK currently eschews any idea of personal ownership, we cannot ignore the thriving black market for personal data across the globe as a result of the increasing sophistication of technologies and methodologies used by cyber criminals, or indeed the billion dollar businesses which arose from the intermix of code and ‘freely’ given personal data for various ‘services’. What values do we hold in personal data that may make propertisation objectionable? Do those values change once data are ‘anonymised’ or ‘de-identified’?

In the two decades since the enactment of the Data Protection Directive 95/46/EC, personal data has become commoditised and is an essential asset to public, private and third sector organisations. While data has become infinitely more valuable, the protection of privacy and the safeguarding of individual autonomy has concomitantly become more difficult to attain. The meaningless of ticking a box to consent has at once become a cliché of modern life but also represents the stark power imbalances between individuals and those that continue to collect, hold and process our personal data.

The forthcoming General Data Protection Regulation has been lauded as a marked improvement in data protection law, offering individuals’ more ‘control’ over their personal data, notably through the introduction of new or expanded data subject rights including the right to data portability, the right to be forgotten and with the heightened requirements for obtaining valid consent. However, many of these new or expanded rights are limited and do not address the fundamental power imbalance between a data subject and a data controller. Data controllers are still in ‘control’ – they remain free to determine the legal basis, purpose for, and manner in which, they will process personal data. Enhanced legal requirements for obtaining valid consent does not address this nor does it recognise sufficiently the economic value in an individual’s personal data. If data controllers continue to reap such high economic value from personal data, and moreover, in light of the risks posed by the growing prominence of data breaches, why can’t individuals assert and exercise a form of ownership over their data to compensate?

Data protection law effects a relationship with individuals primarily based on ‘rights’, despite the fact that the provisions of current and forthcoming legislation facilitate the transfer of personal data, often for economic exploitation. This is a fact just as it is also true that personal data holds an intrinsic value to personhood. A property model could provide individuals with actual control over certain economic uses of their data in recognition of the value that it represents in today’s economy. Yes, commercialisation of personal data could lead to more exploitation, but as argued by Mason and Laurie in relation to human tissues and organs: ‘… merely because we face that prospect is no reason in se to refuse to recognise property rights as a matter of principle…Indeed, the non-recognition of property rights arguably perpetuates exploitation; it has, for example, done little, to date, to prevent a thriving global black market in organs and tissues.’[7]

So to answer the question posed by the title of this blog, I would suggest that there is no reason in principle why a property model working alongside data protection (and privacy laws) could offer individuals further respect and control over their personal data, data which reaps such value for data controllers (and even criminals) across the globe. At a time of political, social and economic uncertainty, the time is ripe to rethink the relationship between the law and personal data.



[1] JK Mason and GT Laurie, Consent or Property? Dealing with the Body and Its Parts in the Shadow of Bristol and Alder Hey (2001) 64 The Modern Law Review 710 <http://dx.doi.org/10.1111/1468-2230.00347>.
[2] Human Tissue Act 2004, s 1.
[3] Mason and Laurie (n 1) 729.
[4] Administrative Data Research Centre Scotland <http://adrn.ac.uk/centres/scotland>.
[5] Graeme Laurie and Emily Postan, Rhetoric or Reality: What Is the Legal Status of the Consent Form in Health-Related Research? [2012] Medical Law Review; Graeme Laurie and Leslie Stevens, Developing a Public Interest Mandate for the Governance and Use of Administrative Data in the United Kingdom (2016) 43 Journal of Law and Society 360; Graeme Laurie, Liminality and the Limits of Law in Health Research Regulation: What Are We Missing in the Spaces In-Between? [2016] Medical Law Review 1.
[6] Julie E Cohen, Examined Lives: Informational Privacy and the Subject as Object (2000) 52 Stanford Law Review 1373; L Lessig, Code (Basic Books 2006); Nadezhda Purtova, Property in Personal Data: A European Perspective on the Instrumentalist Theory of Propertisation <http://www.ejls.eu/6/84UK.htm>; Marc Rodwin, Patient Data: Property, Privacy & the Public Interest [2010] American Journal of Law and Medicine; Jacob M Victor, The EU General Data Protection Regulation: Toward a Property Regime for Protecting Data Privacy (2013) 123 Yale Law Journal 513.
[7] Mason and Laurie (n 1) 727.